As many of you have already seen on Facebook, our MRI results were good today with no cancer present in Mikey's brain. We were very relieved and happy. It's amazing the stress we feel before these scans even though we try not to think about it and put it in the Lord's hands.
Thank you for your many thoughts and prayers today. There was
some miscommunication with the hospital about our MRI time and then I
ran into bad traffic in Denver so we almost missed our slot for the
MRI. They were just about to bump us (we would have had to wait another week), but thanks to some awesome nurses, we slipped in just in time. I feel like Heavenly
Father blessed us so that our burden could be lifted for today.
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| iphone pic while waiting to get the MRI. Gotta love those hospital jammies. |
Dr. Foreman, our oncologist, said that there is no need for Michael to see the multi-disciplinary clinic at this point, which is a change from earlier plans. He didn't clarify exactly why, but said that right now, all of the things that he would need to be seen for in a multi-disciplinary clinic, he is doing alright at this point. For example, although Michael is not putting on weight easily, he is growing in length, which means that he still producing adequate growth hormone. We will monitor that over the next 6 months before meeting with an endocrinologist. His shunt is working fine (neurosurgeon), and his physical and occupational therapies are going well (rehabiltiation doctor). His eyes are being handled by our opthamologist and we will see him on Tuesday. Unfortunately, Michael's right eye is starting to retract to the center, so the surgery has not been as successful as hoped. We will be discussing our options with Dr. Arnold on Tuesday. Dr. Foreman is also referring us to a plastic surgeon so we can begin finding out any options for Michael's face, such as cross-nerve grafting.
Tonight we took the children to exotic Chick-fil-a to celebrate. Although it sometimes seems ordinary to us, we have to remind ourselves that it is not ordinary, every day is special and we have no idea what the future holds for Michael.
As we celebrate today, we also ask that you please keep our dear friend, Hazel Sievers, in your prayers. You may read more on their website:
https://www.mylifeline.org/hazelanne/
This is our reality with babies with cancer. But we also know Hazel to be one of God's best. We send our love to the Sievers family.
What a relief, and a great cause to celebrate this wonderful news of the Mikey's MRI results! Yay! I LOVE LOVE LOVE seeing the pictures of all of you, it makes you feel so much closer somehow. Keep up the great work you are doing, you are all greatly loved by so many! xo hugs, hugs, and more hugs!
ReplyDeleteThat is so wonderful about Michael, but so very sad about Hazel. How stressful it must be to have to always worry about the next scan:-( You have a wonderful attitude, I don't think you could shoulder this burden and heartache without knowing and accepting that the Lord has a plan for you and a plan for Michael.
ReplyDeleteYou never know what is in store and your experiences and attitude teach me that I need to enjoy the everyday more with my own children and family.
Love you guys, The Bellamy Family
Mikey has been on my mind recently. So glad for the good news!
ReplyDeleteI was so excited and happy to see the news on Facebook yesterday. I had been thinking about you during the day. Yay!!!! Anna has been learning to say her prayers and we have had her asking Heavenly Father for blessings for Michael at night. It's funny, though, now when she says prayers, she might forget everything else (the food, the scriptures, etc) but she always remembers to ask help for Cousin Michael. We pray for you all and for him every day. Bless you all!
ReplyDeleteSUCH WONDERFUL NEWS! I'm so thrilled for you and your family. You continue to be in my prayers.
ReplyDeleteWonderful news and so grateful for your blog post since I'm not on facebook :-) Love the celebration at Chick-fil-A....my kids go gaga over their shakes. We said special prayers for Mikey yesterday but in reality we pray for him and all of you everyday. I'm excited to share the good news with the kids when they get home from school today! Much love, Gina & fam
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