We had a couple of hours of time to kill between the scan in the early morning and the multi-disciplinary clinic in the afternoon, so we met up with my sister Becky. It was so great to see her and the time flew by fast. Spending time with her really hit the spot to help ease the anxiety on a long day while we anticipated the results of Michael's scan.
In the afternoon I met with a team of doctors and specialists, including the neurosurgeon, neuro-oncologist, ophthalmologist, endocrinologist, physical rehab, and psychiatrist. We'll make another trip in the fall to meet with some of the doctors we couldn't meet with this time.
We were relieved to hear that Michael's scan was clean! What a miracle. His oncologist Dr. Foreman confided that it's very unusual for someone who was diagnosed at such an early age as Michael (6 months old) to not have had a recurrence by now. With each clean scan the chances of a recurrence decrease. Michael has paid (and continues to pay) such a terrible price for his cancer treatments, but we're so grateful that he's still with us and thriving.
There were no setbacks or bad news this time around. Everyone was thrilled at the progress he's made in reading, walking, and talking. One concern from last time was that his growth hormone level was very low (a common side effect of radiation to the brain) and that he would soon need daily hormone shots. This time around his growth hormone levels were back in the normal range, which the doctor wasn't able to explain. So we're grateful that no shots are needed at this time.
Immediately after our visits with all the doctors we raced back to Fort Collins just in time to catch Michael's preschool graduation. Michael has meant so much to his teachers and many of the other students these last two years, and they really wanted him there. Michael has thoroughly enjoyed preschool experience as well and was one proud kid at his graduation.
| Michael and his preschool teachers: Deann, Kris, and Carrie |
Two years ago Michael couldn't stand or walk at all, and his only form of communication was sign language. Today he navigates pretty well in his walker, can take a few steps on his own, and can talk well enough to not have to rely on sign language all that much any more. He tries to read just about anything in sight, and although his handwriting is terrible, his ability to spell words is uncanny. Sometimes if we can't quite understand what he's saying we'll ask him to spell it, and he's usually spot on.
Next year for kindergarten we're thrilled that Michael will be going to Zach Elementary with his siblings! For a long time the school district tried to send him to another school with a special education program, but it never seemed like a good fit. But we were told it would be unlikely Zach would have the resources to accommodate him. Over time and with a lot of effort, the pieces started falling into place. First, Spencer's former kindergarten teacher said that she would love to be Michael's teacher and specifically request to teach him. One of the para-professionals (teacher's aides that help children with special needs) is a family friend and offered her support to help Michael get accepted into Zach. Liz brought Michael to talk to the school principal, and she was really impressed with Michael and said she would love to have Michael come to Zach and offered to help make the arrangements with the district. Shortly after that meeting, we received official approval from the district for Michael to attend Zach! Not only that, the kindergarten para for next year is our family friend! There are still a number of logistical issues to work out, but we're very excited to have 4 of our children attending the same school next year.
The other good news is that our family is finally healthy again. We were been battling, flus, colds, and infections for several weeks. Liz had bronchitis and pneumonia on top of all that as well. Even less fun when you're almost 8 months pregnant and have no immune system to fight it off and have restrictions on the medicines you can take. Fortunately I was able to work from home for a week and a half to run the household and take care of those who were sick (including myself) so that Liz could rest and recover. Some friends from church brought meals a few of the nights which was greatly appreciated. Liz's parents were scheduled to visit us during that time and had to postpone their trip by a few weeks until everyone had recovered. Liz had a birthday during that time and spent most of it in bed, but did emerge long enough to open a few presents and have a bite of ice cream cake brought over by friends. It was a crazy and unexpected couple of weeks, we're glad they're finally over!

